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Loeys-Dietz Syndrome Foundation Canada

Organization Description
List of Services

Provides information, support, and resources to individuals living with Loeys-Dietz syndrome and related Heritable Thoracic Aortic Disorders.

835 Selkirk Avenue, Pointe-Claire, QC H9R 3S2
Coverage Area: Kanata / Canada
Accessibility: Wheelchair not accessible
Mon: 10am - 6pm
Tue: 10am - 6pm
Wed: 10am - 6pm
Thu: 10am - 6pm
Fri: 10am - 6pm
AST hours
General Inquiries
1-514-471-0442
Toll-Free Number
1-888-LDS-FCAN * Across Canada
1-888-537-3226
English * French
https://www.loeysdietzcanada.org/
info@loeysdietzcanada.org

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Heritable Thoracic Aortic Disorder Patient and Caregiver Resources

Provides online information and resources for individuals with Loeys-Dietz Syndrome and caregivers. Includes:

Diagnosis support
Treatment options
Surgery preparation guides
Fitness guides
General information

Loeys-Dietz Families Peer Support

Online peer support Facebook group for families affected by Loeys-Dietz syndrome.

Loeys-Dietz Syndrome Helpline

Offers free, confidential, and non-medical support and referrals by phone for individuals living with Loeys-Dietz syndrome, their care partners, and healthcare professionals.

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We acknowledge that the land on which we learn, live and work is the traditional unceded territory of the Mi’kmaq people of Epekwitk, represented by the Abegweit First Nation and Lennox Island First Nation.